Secure Data Shapes the Future of Research

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As British politics shifts under a new Labour government, the focus on advancing life sciences and medical technology underscores the critical role of data and technology in reshaping healthcare

CREDIT: This is an edited version of an article that originally appeared on NHS England

Hilary Fanning, Senior Responsible Owner of the Data for Research and Development Programme, highlights the transformative potential of the UK’s latest data initiatives.

The Data for Research and Development Programme aims to provide safe, sustainable and reliable health data services, aligning seamlessly with the Government’s objectives to leverage AI for diagnostics, enhance data accessibility and improve the efficiency of clinical trials. By adopting a new data access model that is both broad in scale and deep in granularity, this initiative is set to revolutionise healthcare research and development, resulting in improved patient outcomes and more efficient health services.

Secure Data Environments

The NHS is making significant strides in facilitating safe and secure data access while prioritising patient privacy and ensuring that public benefit remains the core focus of its efforts.

Central to the strategy are Secure Data Environments (SDEs)—protected analytical spaces where NHS-generated data can be securely accessed by authorised researchers. This approach represents a major advancement from traditional data sharing methods, providing controlled access within an NHS-managed environment to bolster security and expedite access to vital health datasets.

Milestones and progress

Innovative initiatives, such as the Prostate Progress campaign by Prostate Cancer Research, are already leveraging Secure Data Environments by integrating clinical data with patient-reported outcomes. These programs will offer researchers valuable insights to develop innovative treatments, enhance diagnostic accuracy, and optimize NHS services.

Looking Ahead

Looking ahead, the Data for Research and Development Programme promises to be transformative. In the coming years, it will enable groundbreaking research that could revolutionise healthcare, address significant health challenges and support the government’s goal of using data and technology to enhance efficiency, accessibility and quality of care within the NHS.

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